SciELO - Scientific Electronic Library Online

 
vol.7 número2Cortisol como variável em psicologia da saúdeEstudo de ideação suicida em adolescentes de 13 e 19 anos índice de autoresíndice de assuntospesquisa de artigos
Home Pagelista alfabética de periódicos  

Serviços Personalizados

Journal

Artigo

Indicadores

Links relacionados

  • Não possue artigos similaresSimilares em SciELO

Compartilhar


Psicologia, Saúde & Doenças

versão impressa ISSN 1645-0086

Psic., Saúde & Doenças v.7 n.2 Lisboa  2006

 

Aspectos psicossociais e qualidade de vida da degenerescência macular relacionada com a idade

Isabel Silva*1 & José Pais-Ribeiro2

1 Universidade Fernando Pessoa, Porto

2 Faculdade de Psicologia e de Ciências da Educação do Porto

 

 

Resumo: A degenerescência macular relacionada com a idade é uma patologia que provoca diminuição da acuidade visual e possível perda irreversível da visão, constituindo a principal causa de cegueira nos países ocidentais. Trata-se de uma doença crónica com tendência aumentar e que tem um significativo impacto na vida do doente e da sua família, bem como um impacto colossal em termos económicos para os sistemas de saúde, o que tem contribuído para o interesse crescente pelo desenvolvimento de estudos no domínio das reacções psicológicas ao diagnóstico e gestão da doença, e da qualidade de vida destes doentes. No presente trabalho apresenta-se uma revisão da literatura relativa aos principais aspectos psicossociais, implicações na qualidade de vida, independência e reabilitação destes doentes.

Palavras chave: Aspectos psicossociais, Degenerescência macular, Qualidade de vida.

 

Psychosocial impact and quality of life of age-related macular degeneration

Abstract: Age-related macular degeneration is a major public health problem, which has significant deleterious consequences, given that it causes decreased visual acuity and loss of central vision. This disease is becoming increasingly common among people over 50 years old. Age-related macular degeneration has serious economic consequences, but it is also associated with a significant psychosocial impact and with an important decrement in quality of life of the patient and his/her family. In the present paper we intend to proceed to a literature review related to psychosocial variables implied in diagnostic and treatment of age-related macular degeneration, patients’ quality of life, independence and rehabilitation.

Key words: Age-related macular degeneration, Psychosocial impact, Quality of life.

 

 

Texto completo disponível apenas em PDF.

Full text only available in PDF format.

 

 

Referências

Ambrecht, A.M., Aspinall, P.A., & Dhillon, B. (2004). A prospective study of visual function and quality of life following PDT in patients with wet age related macular degeneration. British Journal of Ophthalmology, 88, 1270-1273.

        [ Links ]

American Academy of Ophthalmology (2005). Age-related macular degeneration. Retirado de http://www.aao.org/education/library/ppp/amd_new.cfm, em 10 de Maio de 2006.

Bonastre, J., Pen, C. Le, Anderson, P., Ganz, A., Berto, P., & Berdeaux, G. (2002). The epidemiology, economics and quality of life burden of age-related macular degeneration in France, Germany, Italy and the United Kingdom. European Journal of Health Economics, 3, 94-102.

Brody, B.L., Roch-Levecq, A.C., Thomas, R.G., Kaplan, R.M., & Brown, S.I. (2005). Self-management of age-related macular degeneration at the 6-month follow-up: A randomized controlled trial. Archives of Ophthalmology, 123(1), 46-53.

Broman, A.T., Munoz, B., Rodriguez, J., Sanchez, R., Quigley, H.A., Klein, R., Snyder, R., & West, S.K. (2002). The impact of visual impairment and eye disease on vision-related quality of life in a Mexican-American population: Proyecto VER. Investigative Ophthalmology & Visual Science, 43(11), 3393-3398.

Brown, G.C., Brown, M.M., Sharma, S., Stein, J.D., Roth, Z., Capanella, J., & Beauchamp, G.R. (2005). The burden of age-related macular degeneration: A value-based medicine analysis. Transactions of the American Ophthalmolology Society, 103, 173-186.

Brown, M.M., Brown, G.C., Stein, J., Roth, Z., Campanella, J., & Beauchamp, G.R. (2005). Age-related macular degeneration: Economic burden and value-based medicine analysis. Canadian Journal of Ophthalmology, 40, 277-287.

Cinoto, R.W., Berezovsky, A., Belfort Jr., R., & Salomão, S.R. (2006). Comparação entre qualidade de visão auto-relatada e acuidade visual em população idosa de baixa renda na cidade de São Paulo. Arquivo Brasileiro de Oftalmologia, 69(1), 17-22.

Colenbrander, A. (2003). Aspects of vision loss – visual functions and functional vision. Visual Impairment Research, 5(3), 115-136.

Dahlin-Ivanoff, S., Sonn, U., & Svensson, E. (2001). Development of an ADL instrument targeting elderly persons with age-related macular degeneration. Disability and Rehabilitation, 23(2), 69-79.

Eklund, K., Sonn, U., Nystedt, P., & Dahlin-Ivanoff, S. (2005). A cost-effectiveness analysis of a health education programme for elderly persons with age-related macular degeneration: A longitudinal study. Disability and Rehabilitation, 27(20), 1203-1212.

Hall, N.F., & Gale, C.R. (2002). Prevention of age related macular degeneration. British Medical Journal, 325. Retirado de www.bmj.org em 28 de Abril de 2006.

Hart, P.M., Chakravarthy, U., Stevenson, M.R., & Jamison, J.Q. (1999). A vision specific functional index for use in patients with age related macular degeneration. British Journal of Ophthalmology, 83, 1115-1120.

Heine, C., & Browning, C.J. (2002). Communication and psychosocial consequences of sensory loss in older adults: Overview and rehabilitation directions. Disability and Rehabilitation, 24(15), 763-773.

Heine, C., Erber, N.P., Osborn, R., & Browning, C.J. (2002). Communication perceptions of older adults with sensory loss and their communication partners: Implications for intervention. Disability and Rehabilitation, 24(7), 356-363.

Hill, A.R., Aspinall, P.A., & Cotton, L. (2004). Satisfaction as a low-vision service outcome measure. Visual Impairment Research, 6(2-3), 73-87.

Horowitz, A., Reinhardt, J.P., & Boerner, K. (2005). The effect of rehabilitation on depression among visually disabled older adults. Aging & Mental Health, 9(6), 563-570.

Horowitz, A., Reinhardt, J.P., Boerner, K., & Travis, L.A. (2003). The influence of health, social support quality and rehabilitation on depression among disabled elders. Aging & Mental Health, 7(5), 342-350.

Howe, L.J. (2003). Management of age related macular degeneration: Still room for improvement. British Journal of Ophthalmology, 87, 375.

McGrory, A., & Remington, R. (2004). Optimizing the functionality of clients with age-related macular degeneration. Rehabilitation Nursing, 29(3), 90-94.

Meads, C., & Moore, D. (2006). The clinical effectiveness and cost utility of photodynamic therapy for age-related macular degeneration. Report 24, 2001, West Midlands Health Technology Appraisal Collaboration, Department of Public Health & Epidemiology, University of Birmingham.

Mitchell, J., & Bradley, C. (2001). Psychometric evaluation of the 12-item Well-Being Questionnaire for use with people with macular disease. Quality of Life Research, 10, 465-473.

Mitchell, J., & Bradley, C. (2004). Design of an individualised measure of the impact of macular disease on quality of life (the MacDQoL). Quality of Life Research, 13, 1163-1175.

Mitchell, J., Bradley, P., Anderson, S.J., Ffytche, T., & Bradley, C. (2002). Perceived quality of health care in macular disease: A survey of members of the Macular Disease Society. British Journal of Ophthalmology, 86, 777-781.

Mitchell, J., Wolffsohn, J.S., Woodcock, A., Anderson, S., McMillan, C.V., Ffytche, T., Rubinstein, M., Amoaku, W., & Bradley, C. (2005). Psychometric evaluation of the MacDQoL individualised measure of the impact of macular degeneration on quality of life. Health and Quality of Life Outcomes, 3(25). Retirado de www.hqol.com/content/3/1/25, em 7 de Maio de 2006.

National Society for the Prevention of Blindness (1984). Survey ’84: Attitudes towards blindness prevention. Sight-Saving, 53, 14-17

Percival, J. (2004). Practical solutions to service shortcomings in the care of older people: The case for professional collaboration. British Journal of Ophthalmology, 88, 439-440.

Ryan, E.B., Anas, A.P., Beamer, M., & Bajorek, S. (2003). Coping with age-related vision loss in everyday reading activities. Educational Gerontology, 29, 37-54.

Schmier, J.K., Halpern, M.T., & Covert, D. (2006). Validation of the Daily Living Tasks Dependent on Vision (DLTV) Questionnaire in a U.S. population with age-related macular degeneration. Ophthalmic Epidemiology, 13, 137-143.

Sociedade Portuguesa de Oftalmologia (2006). DMI: Degenerescência macular relacionada com a idade. Retirado de http://www.dmi.online.pt/, em 08 de Maio de 2006.

Stein, J.D. (2003). Quality of life with macular degeneration: Perceptions of patients, clinicians, and community members. British Journal of Ophthalmology, 87(1), 8-12.

Stein, J.D. (2004). Disparities between ophthalmologists and their patients in estimating quality of life. Current Opinion in Ophthalmology, 15(3), 238-243.

Stein, J.D., Brown, M.M., Brown, G.C., Hollands, H., & Sharma, S. (2003). Quality of life with macular degeneration: Perceptions of patients, clinicians, and community members. British Journal of Ophthalmology, 87(1), 8-12.

Stelmack, J. (2001). Quality of life of low-vision patients and outcomes of low-vision rehabilitation. Optometry and Vision Science, 78(5), 335-342.

Sussman-Shalka, C.J., Cimarolli, V.R., & Stuen, C. (2006). The role of organizations in reaching older adults about vision loss. Educational Gerontology, 32, 297-306.

Tejeria, L., Harper, R.A., Artes, P.H., & Dickinson, C.M. (2002). Face recognition in age related macular degeneration: Perceived disability, measured disability, and performance with a bioptic device. British Journal of Ophthalmology, 86, 1019-1026.

Williams, R.A., Brody, B.L., Thomas, R.G., Kaplan, R.M., & Brown, S.L. (1998). The psychosocial impact of macular degeneration. Archives of Ophthalmology, 116, 514-520.

 

 

* Contactar para E-mail: ilopessilva@hotmail.com

Recebido em 10 de Maio de 2006 / aceite em 2 de Outubro de 2006