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Psicologia, Saúde & Doenças

versão impressa ISSN 1645-0086

Psic., Saúde & Doenças v.3 n.2 Lisboa  2002

 

Revisão da literatura sobre avaliação da Qualidade De Vida (QDV) de adultos com Epilepsia. II

– facilidades na abordagem do tema

Rute F. Meneses1,2,3, José P. Ribeiro1,2,3, & A. Martins do Silva2,3,4

1Faculdade de Psicologia e de Ciências da Educação da Universidade do Porto – Portugal

2Serviço de Neurofisiologia do Hospital Geral de Santo António, Porto – Portugal

3Instituto de Biologia Molecular e Celular da Universidade do Porto – Portugal

4Instituto de Ciências Biomédicas Abel Salazar, Universidade do Porto – Portugal

 

RESUMO: A revisão da literatura efectuada na primeira parte deste trabalho, sobre Qualidade de Vida (QDV) e Epilepsia em adultos, levantou questões às quais urge responder. Por isso, o objectivo deste trabalho é apresentar: (a) o(s) modelo(s) de integração existente(s)/resultados da investigação estabelecidos, de modo a esboçar(em)-se modelo(s) de integração; e (b) as diferenças e semelhanças entre/indicações dos instrumentos de QDV mais citados (SF-36 e QOLIE-89, -31, -10 e -AD-48). Espera-se que este trabalho, em que também é focada a investigação que é feita neste âmbito em Portugal, contribua para uma melhor avaliação e, consequentemente, promoção da QDV de indivíduos adultos com Epilepsia em Portugal.

Palavras chave: Adultos, Epilepsia, Qualidade de vida

 

Reviewing the literature on Quality Of Life (QOL) assessment of Epileptic adults. ii facilities in the approach of the subject

ABSTRACT: The literature review on Quality of Life (QOL) and Epilepsy in adults, undertaken in the first part of this work, raised questions demanding urgent answers. Therefore, the aim of this paper is to present: (a) the existing integration model(s)/ established research data, in order to sketch integration model(s); and (b) the differences and similarities between/indications for use the most quoted QOL instruments (SF-36 and QOLIE-89, -31, -10 e -AD-48). We also focus on QOL research done in Portugal. It is hoped that this work may contribute to a better QOL assessment and promotion in Portuguese adults with epilepsy.

Key words: Adults, Epilepsy, Quality of life

 

Texto completo disponível apenas em PDF.

Full text only available in PDF format.

 

REFERÊNCIAS

Aaronson, N.K., Acquadro, C., Alonso, J., Apolone, G., Bucquet, D., Bullinger, M., Bungay, K., Fukuhara, S., Gandek, B., Keller, S., Razavi, D., Sanson-Fisher, R., Sullivan, M., Wood-Dauphinee, S., Wagner, A., & Ware, J.E., Jr. (1992). International quality of life assessment (IQOLA) project. Quality of Life Research, 1, 349-351.

Amir, M., Roziner, I., Knoll, A., & Neufeld, M.Y. (1999). Self-efficacy and social support as mediators in the relation between disease severity and quality of life in patients with epilepsy. Epilepsia, 40 (2), 216-224.

Anderson, R.T., Aaronson, N.K., & Wilkin, D. (1993). Critical review of the international assessments of health-related quality of life. Quality of Life Research, 2, 369-395.

Baker, G.A. (1995). Health-related quality-of-life issues: Optimizing patient outcomes. Neurology, 45 (suppl. 2), S29-S34.

        [ Links ]

Baker, G.A., Hesdon, B., & Marson, A.G. (2000). Quality-of-life and behavioural outcome measures in randomised controlled trials of antiepileptic drugs: A systematic review of methodology and reporting standards. Epilepsia, 41 (11), 1357-1363.

Baker, G.A., Smith, D.F., Dewey, M., Jacoby, A., & Chadwick, D.W. (1993). The initial development of a health-related quality of life model as an outcome measure in epilepsy. Epilepsy Research, 16, 65-81.

Bowling, A. (2001). Measuring disease: A review of disease-specific quality of life measurement scales (2nd ed.). Buckingham: Open University Press.

Brazier, J.E., Harper, R., Jones, N.M.B., O’Cathain, A., Thomas, K.J., Usherwood, T., & Westlake, L. (1992). Validating the SF-36 health survey questionnaire: new outcome measure for primary care. British Medical Journal, 305, 160-164.

Brazier, J.E., Walters, S.J., Nicholl, J.P., & Kohler, B. (1996). Using the SF-36 and Euroqol on an elderly population. Quality of Life Research, 5, 195-204.

Brazier, J., Jones, N., & Kind, P. (1993). Testing the validity of the Euroqol and comparing it with the SF-36 health survey questionnaire. Quality of Life Research, 2, 169-180.

Buck, D., Jacoby, A., Baker, G.A., Ley, H., & Steen, N. (1999). Cross-cultural differences in health-related quality of life of people with epilepsy: Findings from a European study. Quality of Life Research, 8, 675-685.

Cramer, J.A., Arrigo, C., Van Hammée, G., Gauer, L.J., & Cereghino, J.J. (2000). Effect of levetiracetam on epilepsy-related quality of life. Epilepsia, 41 (7), 868-874.

Cramer, J.A., Perrine, K., Devinsky, O., & Meador, K. (1996). A brief questionnaire to screen for quality of life in epilepsy: The QOLIE-10. Epilepsia, 37 (6), 577-582.

Cramer, J.A., Perrine, K., Devinsky, O., Bryant-Comstock, L., Meador, K., & Hermann, B. (1998). Development and cross-cultural translations of a 31-item quality of life in epilepsy inventory. Epilepsia, 39 (1), 81-88.

Cramer, J.A., Westbrook, L.E., Devinsky, O., Perrine, K., Glassman, M.B., & Camfield, C. (1999). Development of the Quality of Life in Epilepsy Inventoy for Adolescentes: The QOLIE-AD-48. Epilepsia, 40 (8), 1114-1121.

Curral, R. (1989). Aspectos psicossociais da epilepsia: Contribuição para o seu estudo. Porto: Faculdade de Medicina da Universidade do Porto.

Curral, R., & Palha, A. (1992). Psychosocial aspects in epilepsy. Boletim da Epilepsia, 1 (1), 18-21.

Devinsky, O. (1993). Clinical uses of the Quality-of-Life in Epilepsy Inventory. Epilepsia, 34 (Suppl. 4), S39-S44.

Devinsky, O., Vickrey, B. G., Cramer, J., Perrine, K., Hermann, B., Meador, K., & Hays, R.D. (1995). Development of the Quality of Life in Epilepsy Inventory. Epilepsia, 36 (11), 1089-1104.

Dodrill, C.B., Batzel, L.W., Queisser, H.R., & Temkin, N.R. (1980). An objective method for the assessment of psychological and social problems among epilepstics. Epilepsia, 21, 123-135.

Ferreira, P.L. (2000a). Criação da versão Portuguesa do MOS SF-36: Parte I – Adaptação cultural e linguística. Acta Médica Portuguesa, 13, 55-63.

Ferreira, P.L. (2000b). Criação da versão Portuguesa do MOS SF-36: Parte II – Testes de validação. Acta Médica Portuguesa, 13, 119-127.

Gill, T.M., & Feinstein, A.R. (1994). A critical appraisal of the quality of Quality-of-Life measurements. Journal of the American Medical Association, 272 (8), 619-626.

Hermann, B.P., Vickrey, B., Hays, R.D., Cramer, J., Devinsky, O., Meador, K., Perrine, K., Myers, L.W., & Ellison, G.W. (1996). A comparison of health-related quality of life in patients with epilepsy, diabetes and multiple sclerosis. Epilepsy Research, 25, 113-118.

Jacoby, A., Baker, G.A., Steen, N., & Buck, D. (1999). The SF-36 as a health-status measure for epilepsy: A psychometric assessment. Quality of Life Research, 8, 351-364.

Kaplan, R.M., & Anderson, J.P. (1990). The general health policy model: An integrated approach. In B. Spilker (Ed.), Quality of life assessments in clinical trials (p. 131-149). New York: Raven Press, Ltd.

Leidy, N.K., Elixhauser, A., Rentz, A.M., Beach, R., Pellock, J., Schachter, S., & Willian, M.K. (1999). Telephone validation of the Quality of Life in Epilepsy Inventory-89 (QOLIE-89). Epilepsia, 40 (1), 97-106.

Leidy, N.K., Rentz, A.M., & Grace, E.M. (1998). Evaluating health-related quality of life outcomes in clinical trials of antiepileptic drug therapy. Epilepsia, 39 (9), 965-977.

McHorney, C.A., Ware, J.E., Jr., & Raczeck, A.E. (1993). The MOS 36-Item Short-Form Health Survey (SF-36): II. Psychometric and clinical tests of validity in measuring physical and mental health constructs. Medical Care, 31 (3), 247-263.

Meneses, R.F., Ribeiro, J.P., & Silva, A.M. (2001). Promoção da qualidade de vida em doentes crônicos. In M.L. Marinho, & V.E. Caballo (Orgs.), Psicologia clínica e da saúde(p. 295-325). Londrina/Granada: Ed. UEL/APICSA.

Meneses, R.F., Ribeiro, J.P., & Martins da Silva, A. (2002). Revisão da literatura sobre avaliação da Qualidade de Vida (QDV) de adultos com Epilepsia. I: Dificuldades na abordagem do tema. Psicologia, Saúde & Doenças, 3 (1), 61-88.

Pais Ribeiro, J., & Taveira, M.C. (1994). Methods assessing psychosocial problems of persons with epilepsy: Contributions of patients centered procedures. Boletim da Epilepsia, 1 (3), 27-34.

Perrine, K.R. (1993). A new quality-of-life inventory for epilepsy patients: Interim results. Epilepsia, 34 (Suppl. 4), S28-S33.

Petersen, B., Walker, M.L., Runge, U., & Kessler, C. (1998). Quality of life in patients with idiopathic, generalized epilepsy. Journal of Epilepsy, 11, 306-313.

RAND (1993a). Epilepsy Surgery Inventory (ESI)-55: RAND Health Sciences Program. Santa Monica: RAND.

RAND (1993b). Quality of Life in Epilepsy: The QOLIE inventory – An information resource. Santa Monica: RAND.

Ribeiro, J.L.P., Mendonça, D., & Silva, A.M. (1997). Construção de uma escala de avaliação da qualidade de vida para doentes epilépticos. Boletim da Epilepsia, 2 (2), 32-42.

Ribeiro, J.L., Mendonça, D., & Silva, A.M. (1998). Impact of epilepsy on QOL in a Portuguese population: exploratory study. Acta Neurologica Scandinavica, 97, 287-294.

Shumaker, S.A., Anderson, R.T., & Czajkowski, S.M. (1990). Psychological tests and scales. In B. Spilker (Ed.), Quality of life assessments in clinical trials (p. 95-113). New York: Raven Press, Ltd.

Spilker, B. (1990). Introduction. In B. Spilker (Ed.), Quality of life assessments in clinical trials (p. 3-9) New York: Raven Press, Ltd.

Stavem, K., Bjørnæs, H., & Lossius, M.I. (2000). Reliability and validity of a Norwegian version of the Quality of Life in Epilepsy Inventory (QOLIE-89). Epilepsia, 41 (1), 91-97.

Stavem, K., Loge, J.H., & Kaasa, S. (2000). Health status of people with epilepsy compared with a general reference population. Epilepsia, 41 (1), 85-90.

Stavem, K., Lossius, M.I., Kvien, T.K., & Guldvog, B. (2000). The health-related quality of life of patients with epilepsy compared with angina pectoris, rheumatoid arthritis, asthma and chronic obstructive pulmonary disease. Quality of Life Research, 9, 865-871.

Taveira, M.C., Martins da Silva, A., Mendonça, D., Mena Matos, P., Borges, I.P., & Canijo, M. (1992). Dimensões psicossociais da epilepsia: Avaliação de uma versão Portuguesa do Washington Psychosocial Seizure Inventory (WPSI). Boletim da Epilepsia, 1, 58-65.

Vickrey, B.G. (1993). A procedure for developing a quality-of-life measure for epilepsy surgery patients. Epilepsia, 34 (Suppl. 4), S22-S27.

Vickrey, B.G., Hays, R.D., Graber, J., Rausch, R., Engel, J., Jr., & Brook, R.H. (1992). A health-related quality of life instrument for patients evaluated for epilepsy surgery. Medical Care, 30 (4), 299-319.

Vickrey, B.G., Perrine, K.R., Hays, R.D., Hermann, B.P., Cramer, J.A., Gordon, J., Meador, K.J., & Devinsky, O. (1993a). Scoring Manual for the QOLIE-89, version 1.0. Santa Monica: RAND.

Vickrey, B.G., Perrine, K.R., Hays, R.D., Hermann, B.P., Cramer, J.A., Meador, K.J., & Devinsky, O. (1993b). Scoring Manual for the QOLIE-31, version 1.0. Santa Monica: RAND.

Wagner, A.K., Bungay, K.M., Kosinski, M., Bromfield, E.B., & Ehrenberg, B.L. (1996). The health status of adults with epilepsy compared with that of people without chronic conditions. Pharmacotherapy, 16 (1), 1-9.

Wagner, A.K., Keller, S.D., Kosinski, M., Baker, G.A., Jacoby, A., Hsu, M.-A., Chadwick, D.W., & Ware, J.E., Jr. (1995). Advances in methods for assessing the impact of epilepsy and antiepileptic drug therapy on patients’ health-related quality of life. Quality of Life Research, 4, 115-134.

Wagner, A.K., & Vickrey, B.G. (1995). The routine use of health-related quality of life measures in the care of patients with epilepsy: rationale and research agenda. Quality of Life Research, 4, 169-177.

Ware, J.E., Jr. (with Snow, K.K., Kosinski, M., & Gandek, B.). (1993). SF-36 Health Survey manual and interpretation guide. Boston: J.E. Ware, Jr.

Ware, J.E., Jr., & Sherbourne, C.D. (1992). The MOS 36-item Short-Form Health Survey (SF-36): I. Conceptual framework and item selection. Medical Care, 30 (6), 473-483.

Ware, J.E., Jr., Kosinski, M., Bayliss, M.S., McHorney, C.A., Rogers, W.H., & Raczek, A. (1995). Comparison of methods for the scoring and statistical analysis of SF-36 health profile and summary measures: Summary of results from the Medical Outcomes Study. Medical Care, 33 (4), AS264-AS279.