Síndrome nefrótico e doença celíaca na infância: perspectiva da criança sobre a relação que os outros estabelecem com ela¹

Salomé Vieira Santos² & Teresa Fagulha

Faculdade de Psicologia e de Ciências da Educação, Universidade de Lisboa - Portugal

 

Resumo: Apresentam-se os resultados respeitantes a uma entrevista semi-estruturada para crianças com Síndrome Nefrótico e com Doença Celíaca construída no âmbito de um estudo mais alargado dirigido para o impacto destas doenças na infância. Exploram-se, em particular, as respostas a questões que avaliam a percepção da criança relativamente ao modo como se sente tratada pelos outros em função da doença. Os participantes têm idades compreendidas entre os 6 e os 10 anos e estão distribuídos por dois grupos: G1 - Síndrome Nefrótico (n=27), G2 - Doença Celíaca (n=27). Verifica-se que as crianças não diferem de forma importante no modo como se sentem tratadas pelos outros. No entanto, tendem a manifestar uma percepção diferencial em conteúdos particulares quando estão em causa características específicas da relação que a mãe, o pai e os irmãos estabelecem com elas.

Palavras chave: Crianças, Doença celíaca, Relações interpessoais, Síndrome nefrótico.

 

Nephrotic syndrome and celiac disease in infancy: child' s perspective about the relationship others establish with her

Abstract: A semi-structured interview to children with Nephrotic Syndrome and children with Celiac Disease was developed in the context of a larger study that addressed the impact of these diseases in infancy. Answers to specific questions that evaluate the perception of the way the children feel others treat them, in function of disease, were analyzed. The participants (6 to 10 years old) were distributed in two groups: G1 - Nephrotic Syndrome (n=27), G2 - Celiac Disease (n=27). Results show that, in general, the two groups do not differ importantly. However, they present a differential perception in some domains concerning specific characteristics of the relationship between mother, father and siblings with the child.

Key words: Celiac disease, Children, Interpersonal relationships, Nephrotic syndrome.

 

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¹ Parte deste trabalho foi apresentada no I Congresso Hispano-Português de Psicologia: Para uma Perspectiva Integradora, Santiago de Compostela, Setembro de 2000.

² Contactar para E-mail: svs@fc.ul.pt; Faculdade de Psicologia e de Ciências da Educação da Universidade de Lisboa, Alameda da Universidade, 1649-013 Lisboa, Portugal.