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Psicologia, Saúde & Doenças

versão impressa ISSN 1645-0086

Psic., Saúde & Doenças v.2 n.1 Lisboa jul. 2001

 

A esperança nos pais de crianças com cancro. Uma análise fenomenológica interpretativa da relação com profissionais de saúde 1

Maria Teresa Gouvêa Magão2 & Isabel Pereira Leal3

2 Enfermeira. Professora Adjunta – Escola Superior de Enfermagem de Maria Fernanda Resende

3 Psicóloga. Professora Associada – Instituto Superior de Psicologia Aplicada

 

Resumo: Este estudo explorou com pais de crianças com cancro a sua percepção de interacções com profissionais de saúde (enfermeiros e/ou médicos) que influenciaram a sua esperança. O seu objectivo foi descrever a estrutura de uma relação de esperança. Aos seis pais que se voluntariaram para ser entrevistados, foi pedida a descrição de situações de interacção com influência percebida na sua esperança. Utilizando-se o método de análise fenomenológica interpretativa (Smith, Jarman, & Osborn, 1999) salientaram-se nos resultados duas categorias: “significações da esperança” e “importância das relações”. Estas categorias permitiram aceder a uma maior compreensão da vivência da esperança nestes pais e assim identificar factores promotores e inibidores de esperança na sua relação com os profissionais de saúde. A maioria desses factores foi identificada como pares de valência oposta. Face aos resultados destacam-se três eixos de discussão: esperança e relação com o cuidado; especificidade do cuidado de enfermagem e sua relação com a esperança; o ténue equilíbrio entre a revelação de informação e a manutenção da esperança.

Palavras chave: Cancro infantil, Cuidado de enfermagem, Esperança, Factores inibidores de esperança, Factores promotores de esperança, Psico-oncologia, Relações profissional de saúde-pais.

 

 

Hope in parents of children with cancer. A phenomenological interpretative analysis of the relationship with health care professionals

Abstract: This study explored with parents of children with cancer their perception of interactions with health professionals (nurses and/or physicians) that influenced their hope. Its aim was to describe a hopefull interaction structure. To six parents, who volunteered to be interviewed, was asked to describe interaction accounts with a perceived influence in their hope. An interpretative phenomenological analysis (Smith, Jarman, & Osborn, 1999) was conducted, emerging two main themes: hope meanings and the importance of relationships. These themes enhanced the understanding of the lived experience of this parents’ hope and contributed to the identification of hope enhancing and hope inhibiting factors within their interactions with health professionals. The majority of this factors was identified as pairs of opposing valences. Three axes of discussion are presented: hope and care connection; the uniqueness of nursing care in hope enhancement; the fragile balance between information disclosure and hope maintenance.

Key words: Childhood cancer, Health professionals parents relations, Hope, Hope inhibiting factors, Hope promoting factors, Nursing care, Psycho-oncology.

 

Texto completo disponível apenas em PDF.

Full text only available in PDF format.

 

 

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1 Estudo realizado no âmbito do Mestrado em Psicologia da Saúde, ISPA