Abstract

DIAS, Patricia et al. Well-being, quality of life and hope in family caregivers of people with schizophrenia. Revista Portuguesa de Enfermagem de Saúde Mental [online]. 2020, n.23, pp.23-30. ISSN 1647-2160.  https://doi.org/10.19131/rpesm.0269.

BACKGROUND: With the beginning of the process of psychiatric reform in Brazil through the deinstitutionalization, the preference was adopted for community psychiatric treatment, inserting the family member in the treatment of these patients, generating overload and a concern regarding the quality of life, well-being and hope of these patients family caregivers. AIM: To evaluate the well-being, quality of life and hope of family caregivers of people with schizophrenia. METHODS: A descriptive cross-sectional study was carried out with 117 relatives of schizophrenic patients attending the Psychosocial Care Center in a city of Paraná, Brazil. The World Health Organization 5-Item Well-Being (WHO-5), World Health Organization Quality of Life (WHOQOL-Bref) and Dispositional Scale of Hope instruments were applied. RESULTS: Parents were identified as the main caregivers (53.8%), 74.4% were female; 35% had between four and seven years of study; 97.4% of the caregivers had daily contact with the schizophrenic relative, with an average of 13.4 years of care. Regarding the WHO-5 score, 94.9% presented below 20 points. In the WHOQOL-Bref scale, it was observed that the domain of social relations and the psychological domain were those with the lowest score, m = 2.8 and m = 3.2, respectively. In the Dispositional Scale of Hope, 77.8% of the sample had a score below 32 points. CONCLUSION: The study has made significant advances in the knowledge about the family caregiver of people with schizophrenia and their main apprehensions regarding quality of life, well-being and hope, as well as the subsidy for the reformulation of mental health services and policies.

Keywords : Family caregiver; Schizophrenia; Quality of life; Hope.

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