Abstract

ABREU-FILHO, Antonio G.; OLIVEIRA, Acary S. B.  and  SILVA, Helga C. A.. Psychology and social aspects of amyotrophic lateral sclerosis: review. Psic., Saúde & Doenças [online]. 2019, vol.20, n.1, pp.88-100. ISSN 1645-0086.  https://doi.org/10.15309/19psd200107.

Our objective was to review the psychological and social aspects in amyotrophic lateral sclerosis (ALS), a neurodegenerative motor disease with a median survival of 36 months. We performed a literature search in PubMed - MEDLINE (Medical Literature Analysis and Retrival System Online), Lilacs (Latin American and Caribbean Health Sciences) and The Cochrane Library, with the descriptors: a) Amyotrophic Lateral Sclerosis and Psychology, b) Amyotrophic Lateral Sclerosis and Social. Two of the authors independently analyzed the studies and agreed to the final selection. In the 56 articles selected, we identified 14 themes: bad news - the moment of diagnosis and the life with ALS, patient - multi-professional team relationship, quality of life, premorbid personality, depression, hope, defense mechanisms, sexuality, emotional lability, end of life, caregivers, burnout syndrome and PatientsLikeMecommunity - ALS. Relevant social and psychological changes occur in patients with ALS, as well as in caregivers / family members and multidisciplinary team.

Keywords : multidisciplinary team; amyotrophic lateral sclerosis; motor neurone disease; psychology.

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